Showing posts with label lordosis. Show all posts
Showing posts with label lordosis. Show all posts

Thursday, February 13, 2020

Inaccessibility in 2019. πŸ‘Ž

March 01, 2019

So this is the post I spoke about in my last post about Kolkata - Inaccessibility in 2019.
As I said before, we went to meet my long time friend Sita from the US who had come down to Kolkata only to meet us! She was staying in a hotel near to the airport and had suggested we do the same to save on time travelling from one end of the city to another. I was more than happy to oblige. Only, we did not get the same hotel as it was fully booked. But on reaching the area, we found that the hotel we had booked was exactly opposite theirs! It was great.
(Image courtesy - Google)

So when we reached our hotel, a grand flight of stairs greeted us at first, but wait, there was hope. A little further down the parking was a small ramp to go from the road to the pavement in front of the hotel. And then another longer one to go from the pavement to the hotel. Yay!! But wait, a car was parked right in front of the small ramp to the pavement πŸ˜‘πŸ˜‘πŸ˜‘
Of course I took a pic! 😬😈


Poor papa had to go even further down and then find a place from where Vin's wheelchair could go up easily. So here the hotel had made all accessible arrangements, but the general public is uneducated where accessibility is concerned.

Vineet's wheelchair was helped up the ramp to the hotel by the guard and another staff, which was very nice , and we checked in. A lift (which was not too big for 3 persons including a wheelchair ) ,took Vineet and papa up to our room on the 4th floor. It was a nice room where there was space to maneuver Vineet's wheelchair.


(Images courtesy Google)


I had called up the "Floatel" restaurant on the banks of the Hoogly river for our dinner with Sita and family,as I had heard that there was a beautiful view of the river Ganges from the deck there.

I called up their reception to ask if they had a ramp or lift for wheelchairs to go upto the deck, to which they replied in affirmative. I also asked friends who had been there, they were not so sure. I asked on Google places, there too I got some saying yes, some no , with regard to wheelchair accessibility. But after the restaurant's confirmation, we decided to go ahead.

Sita and family were already in the restaurant when we reached (late, as always πŸ˜…) . And I was not prepared to encounter what I saw. At the very entrance, there was a flight of 2 steps, which papa is used to maneuvering by now, but not once did the man at the counter right across, come forward to help. πŸ˜ΆπŸ˜’




Anyways, moved ahead a corridor and came upfront to a small wooden ramp which led to nowhere,and then just beside it another wooden plank which finally led to the King of all ramps!!!


Never in my life have I seen a ramp as steep as the one I saw that day!! A voice inside me said, no , you can't allow Vineet's wheelchair to go on that . No. Then I thought about Sita and her family who were already seated down below, and also , a few staff came forward to help. With a very very scared heart, I watched papa bring Vineet down the ramp facing the opposite way, with the help of 3-4 staff. And stairs again at the bottom of the ramp πŸ˜¬πŸ˜’πŸ˜Ά

After that there was a small lift which took Vineet and papa to another corridor who's doors led to the restaurant. Phew!!
But all the stuff that was boiling inside me vanished as soon as I saw my dear Sita's face at the door!! I was finally hugging my dear friend of more than 10 years from another country !! It was an indescribable feeling.

We settled in and I took some time to relax and realize that just beside the restaurant a door led to a small deck outside. I asked Sita if we could go and sit there but was informed that it was crammed and a few tables were booked as well . Gone were the dreams of sitting on the deck and enjoying the view of the Ganges with my dear friend and her family.......πŸ˜žπŸ˜–
Nevertheless, we had an awesome time talking and having the buffet dinner. After which we proceeded back to our hotels and planned to meet for lunch at a nearby mall the next day.

#CityCentreMallKolkata

(Image courtesy - Google)


The next day, after having a great chit chat at the hotel where Sita and fam were put up, we proceeded towards a well known mall -  City Centre Salt Lake, Kolkata, for lunch.
Again. Embarrassment.
There was no ramp from the road to the pavement. 😬

Ok, that's normal to expect I guess..,πŸ˜’

We had to go to the 2nd floor, so we searched for the lifts. Got them.
Then again - A huge step leading to the lift section. A very narrow door , through which Vineet's and Esha's wheelchairs barely managed to scrape through.
  By now I was seriously thinking of putting in a complaint. Thankfully the lifts were big in size and could accommodate one family with a wheelchair at one go . And there were 2 lifts (only. For such a huge mall)


So we ended up roaming on the ground floor more and finally after a fast food lunch 😜, we sat for some awesome tea. I was having mixed feelings as we were leaving for home from there itself and the Kumars would be leaving the next day. I felt so sad and empty coz it was too short a visit for a good friend like Sita❣️



{As I was about to post this, I just remembered the short and steepest ramp ever at the Hotel where Sita and Fam were put up. It was a ramp just for name's sake. To lure people like Sita who have no idea what a ramp could also look like in some hotels but on their websites they mention it and thus fool a customer, especially if they are from a distant country....whats this???? πŸ˜¬πŸ˜–πŸ˜“   Not Done}

Friday, February 26, 2016

Vineet, Math and Academics

This is an important post which I had started drafting some time back. But I have to respect Vineet's wishes and not relate this topic entirely to his situation. So this is going to be a general topic mostly and I hope it helps you who are having similar situations, especially people in Eastern India.

So, as the story goes, Vineet was doing mediocre in his mainstream  school until middle school. Only when he went to high school did we realise that his handwriting had turned illegible and he was also having problems with arithmetic part of mathematics. I now understand that both are problems related to spina bifida. I was supposed to take him to "Manovikas Kendra "  in Kolkata for his evaluation, but unfortunately we couldn't do it for time constraints  (which is a bad excuse I guess...) :/

Fast forward to today. Vineet is going to appear for his class 10 board exams from Monday, and he has gotten himself a writer. Math is still a problem but he is concentrating on the algebra and has worked hard on arithmetic too. Geometry is still a problem though...

So here's a small request for you dear friends, kindly keep Vineet in your prayers as he goes for his board exams from Monday. It will go on for a month till 28th March. Please pray that he may get back his self confidence with the results later this year....

Thankyou so much!


Wednesday, September 23, 2015

Vineet needs a new mattress. But it can't be the 'normal' one.


For years now, Vineet has been using the normal mattress that we all mostly use - the coir one with thin foam lining. Maybe there are springs inside as well, I don't know. In India its the number one brand by the name- 'Kurl-on''. We have known this brand since our childhood and we know no other.

Vineet has a very severe type of scoliosis associated with his condition and I am told that it might be called ''LORDOSIS". I don't know whether surgery will be beneficial for him, and frankly, I dread it. Coz the Orthopaedic doctor at 'Christian Medical College and Hospital, Vellore' had told us that he could put in rods, but rehab would take around 6 months or so. Now Vin and me can't stick around at any hospital for a period of more than 7 days, 6 months??!!! NO NO NO!! is what we both said :P So we left it at that. Vineet has been very gracious enough to allow me to put up the fotos of his back at an earlier age in this blog. He said its okay since its supposed to help parents of other similar kids :) Isn't he an Angel :)

Top viewof his SB site
 at age 5
Side view at age 5
   
Now at 15 years of age , Vin suddenly lost all his baby fat and with all the changes of the body at 15 years old, suddenly I find his bone deformity at the SB site has risen up like a mountain! Its uncomfortable to the eyes and though Vin does not have much probs with it considering he uses his back as a support, I know what it means. It means all his organs inside are crushed including the lungs - which is Dangerous as his Uncle Dr. Nitesh says. Any kind of surgery or therapy correction, etc can now happen only after his Class 10 Board Exams next year in February-March. So as of now, I try not to make him sit at his wheelchair for long hours at a stretch at home. Can't help much at school though....but there's a rest cushion for his back. Its always been there....

So now Vin complains of a backache at times and we do a massage. But he's also tired of sleeping on his sides all the time and now wants to sleep on his back. So started our search on the internet for the most suitable mattress for his condition. First I asked in my various spina bifida groups on Facebook. I received a variety of answers but the most prominent of them was the usage of air mattresses by most respondants.Some were also using water-beds and normal foam mattresses. But I had seen 2 friends and family using air-mattresses and thought they worked fine. So I just walked into a pharmacy and got one - it was cheap so to say, Rupees Two Thousand for the brand Karma. I chose Karma because they had a free replacement policy-no questions asked.



Although Vinsy found the bed very comfortable, it didn't serve our purpose. Even after pumping air to its full volume, it was not high enough to fit-in his bony deformity. Now I had to search online. I searched a lot but couldn't get a satisfactory answer. All I could make out was that you didn't need to have a stiff mattress for backaches anymore. It was completely a wrong notion. Neither are you supposed to use a very soft one. Below are a few sites I stumbled upon searching for the right kind of mattress -
http://myergobed.com/best-mattress-for-scoliosis.php

https://www.novosbed.com/mattrepedia/how-to-find-the-best-mattress-for-scoliosis/

http://www.ebay.com/gds/Which-Mattress-Is-Best-for-Back-Pain-/10000000177628320/g.html

http://www.spine-health.com/wellness/sleep/selecting-best-mattress

https://www.resurgensspine.com/education/resources/frequently-asked-questions-faqs/78

http://www.spine-health.com/wellness/sleep/mattresses-back-conditions

So I deduced and gathered after all the searches of various kinds that there is this mattress called "My Ergo Bed' which they claim is very good for scoliosis. Then there's this 'Memory Foam Mattress' which is the best type that has been developed by NASA scientists. I think this post will be way too long to say more about it, so I am posting a link about it.
http://www.bedinabox.com/history-of-memory-foam-mattresses.php


Now just like you, I too was getting confused between the My Ergo Bed and the Memory Foam Mattress.But blogs and forums like these helped me make a decision -

http://scoliosisnutty.blogspot.in/2007/12/scoliosis-and-memory-foam-mattresses.html
http://scoliosisscoliosisscoliosis.blogspot.in/2010/10/best-mattress-for-those-with-scoliosis.html
http://www.scoliosis.org/forum/showthread.php?1027-Get-a-new-bed

(This is why I blog- we help each other :)

Secondly, I doubt if 'My Ergo Bed' was delivering to India coz it had to be custom made.
Third was the price factor. I found that it was exorbitantly priced.

And then as usual, my dear God helped me :) One day as I was returning home from work, there was a billboard near Vin's school saying - The number One International mattress company was here! In Asansol! A small town in West bengal India! - ECLIPSE. I googled at home and sure enough, they had the Visco Memory foam Mattress! Below is the link to their official website -
http://www.eclipsemattress.in/mattressingredients.html

When we went to visit the store, we had no idea that the memory foam mattresses were so expensive! There were so many varieties, for a moment we got puzzled. Then we tried on a few samples and decided on this one- The 'Ortho Visco' memory foam mattress. We were told it would cost us around Rupees Thirtyfour Thousand for the size of Vin's bed! okay.....hmmm....okay.....so we'll take it. Maybe we 'll  have less pizzas ;) .Papa can sleep next to Vin on it as he's got a slight back prob as well ...
I wished they had a trial period as well....






So the order has been given and we should receive it within a few days. Do please check in the Comments section for my reviews on the mattress when it will have arrived, as also after using it for a month or so.
Wow, this post got lengthier than I thought! Thankyou All for going through and sharing our journey with Vineet - our very special child :)


(P. S.  Please leave your valued comments and suggestions in the comments section, I love going through them  :)


Standing Power Wheelchair

In seated Position
In standing Position




A standing wheelchair is the dream of most paraplegics I could say. And ever since I showed it to Vineet on youtube he had been eager to experience it. For him , as he said, it would be the first time he would stand on his own.

In my post about his power wheelchair I had mentioned that our Surgico-pharma shop had conveyed that the standing power wheelchair would be available for demo soon. So on 11th July 2015 , we visited the shop and indeed, there it was! We were as excited as Vineet to try it. Maybe a little apprehensive too, thinking what if the knee support wasn't strong enough to hold him? Or what if the knee support was too tight on him and he wouldn't know if the pressure was crushing him? Nevertheless, Vineet sat on the wheelchair and slowly he began to rise up from his seating position. And then it struck us all - The huge bony deformity of his 'Lordosis" wouldn't let him rest on his back on the back seat. So as much as my brave Vin tried, he kept falling in front. Daddy was very worried about the knees too....And our demo personnel decided that the model being an adult size did not help much either. So after taking a foto of Vin in it (which he wanted to put up on his FB page :) , we switched it back to the sitting position.



 Our dealer has assured us that he will be on the lookout for a 'Paediatric ' model for Vin. So we came back home a little  disheartened, but our motto in life being - "NEVER SAY DIE", we will still be looking into it. ...... Maybe we'll get ourselves a neat Paediatric model into which I shall get a cutout for the back part and get an elastic cover with a cushion. ..... Or maybe they'll make a model where you can rest forward and not backwards........ The options are endless and our hopes and dreams will lead us to them..... :)

Here is the link to the official video of the product from Ottobock - Its beautiful!
https://youtu.be/uGwHwPx3qsI



THANKS TO ALL WHO ARE GOING THROUGH OUR JOURNEY WITH VINEET !
God bless you!