The World of Vineet

Saturday, July 18, 2009

Vineet is with Tuhina bua in a park on New Years Day

The World of Vineet: Asansol, West Bengal, India; This is actually the mother of Vineet Valentine Victor blogging on behalf of him.Vineet is my 18 year old son who has SPINA BIFIDA. For those who don't know about SB, its a neurological birth defect due to which the spinal cord is damaged and hence most of the nerves from the point of the affected part are rendered senseless.It varies from individual to individual. So since Vineet has the most severe form called 'Mylomeningocele', he has associated "Hydrocephalous",cerebro-spinal fluid in the brain, to put it simply.So he has been shunted- a tube has been inserted permanently to drain out the fluid from the brain to the stomach.He is on a wheelchair because he has zero sensations in the lower part of his body.He is incontinent and has to wear diapers all the time.He also has to be cathed 4 times a day- we put in a catheter to remove the urine. AND inspite of ALL this, we wouldn't have traded him for any other...HE STILL REMAINS THE LOVE OF OUR LIVES.:) He is presently studying in Class 12 and in a mainstream school.Thankyou all for sharing my journey with him.I realise that my blogging will help more parents of SB kids who have yet to travel our path..Thankyou

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