The World of Vineet

Saturday, July 13, 2024

Happy New Year 2024 !

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Okay, apologies for such a big gap !! 3 years is not certainly how big a gap I would have wanted , but I guess it has something to do with V...
Friday, February 16, 2024

New AFOs for Vineet !! (Blog dated 13th February 2020)

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Hello everyone! Happy New Year!! I know I know I'm late as always😜but since this is my first post for the year, better late than n...
Friday, January 15, 2021

HAPPY NEW YEAR 2021 !!!

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Hello people !! Today is 15th January and I’m so happy this year I’m in time to wish you all A very happy new year πŸ˜‚πŸ˜‚πŸ₯³!!  This year has s...
Thursday, February 13, 2020

Inaccessibility in 2019. πŸ‘Ž

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March 01, 2019 So this is the post I spoke about in my last post about Kolkata - Inaccessibility in 2019. As I said before, we went to...

WHEELCHAIR NUMBER 10 (Blog dated 26th November 2019)

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Hello everyone!! I am super excited for Vin today, I mean ever since his 10th wheelchair arrived yesterday 😁 I had my eyes on this ...
Sunday, March 10, 2019

Air India !! Please DO SOMETHING for YOURSELF!

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September 01, 2018 Sorry everyone, this is going to be a rant post. So we had booked #airindia flight tickets to the conference in De...
Sunday, February 24, 2019

HAPPY NEW YEAR 2019

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Hey everyone! Wish you all A very Happy New Year!! New Year brings with it new hopes, dreams, aspirations and a mind waiting to begin afr...
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The World of Vineet
Asansol, West Bengal, India
This is actually the mother of Vineet Valentine Victor blogging on behalf of him.Vineet is my 18 year old son who has SPINA BIFIDA. For those who don't know about SB, its a neurological birth defect due to which the spinal cord is damaged and hence most of the nerves from the point of the affected part are rendered senseless.It varies from individual to individual. So since Vineet has the most severe form called 'Mylomeningocele', he has associated "Hydrocephalous",cerebro-spinal fluid in the brain, to put it simply.So he has been shunted- a tube has been inserted permanently to drain out the fluid from the brain to the stomach.He is on a wheelchair because he has zero sensations in the lower part of his body.He is incontinent and has to wear diapers all the time.He also has to be cathed 4 times a day- we put in a catheter to remove the urine. AND inspite of ALL this, we wouldn't have traded him for any other...HE STILL REMAINS THE LOVE OF OUR LIVES.:) He is presently studying in Class 12 and in a mainstream school.Thankyou all for sharing my journey with him.I realise that my blogging will help more parents of SB kids who have yet to travel our path..Thankyou
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